Caregiver Resource Links - Dementia/Alzheimer’s - The CareGiver Partnership
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There are 52 resource links in this category.
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  1. 5 Million Friends External link icon
    5 million friends; incontinence; urinary incontinence; urine; bladder; urinating; urinate; bladder cancer; frequent urination; urinary incontinence; incontinence urinary; bowel
  2. A Loving Approach to Dementia Care by Laura Wayman External link icon
    This book is a go-to guide for both family caregivers and professional caregivers. Laura Wayman is a keynote speaker and offers training classes to caregivers.
  3. Ageless Design External link icon
    Home modification- dementia information
  4. Alzheimer's and Incontinence by Healing Well External link icon
    An article by by Beverly Bigtree Murphy, MS, CRC, ElderCare Online
  5. Alzheimer's Association External link icon
    The Alzheimer’s Association maintains a toll-free 24-hour information and referral telephone number which provides information packets and referral to the nearest Association Chapter.
  6. Alzheimer's At About.Com External link icon
    About.com is an online neighborhood of hundreds of helpful experts, eager to share their wealth of knowledge with visitors.
  7. Alzheimer's Disease Research External link icon
    Alzheimer's Disease Research informs those directly affected and their caregivers about this disease by offering updates on the latest research, as well as risk factors, prevention and coping strategies and support basic research into the causes and potential treatments of this disease.
  8. Alzheimer's Disease-Caregiving-PBS Second Opinion Webisode External link icon
    Alzheimer's Caregiving-Second Opinion, a PBS series, offers both viewers and physicians an extensive variety of health related webisodes. They worked with a team of medical advisors to make sure the information was medically sound and would help consumers better understand their healthcare options.
  9. Alzheimer's Foundation of America External link icon
    Our mission is ”to provide optimal care and services to individuals confronting dementia, and to their caregivers and families—through member organizations dedicated to improving quality of life.”
  10. Alzheimer's Health Care Association External link icon
    Their focus is on providing quality care to the frail, elderly and disabled, who – because of social needs, disability, trauma or illness – are served by the long term care professionals. The AHCA and member providers advocate for the continuing vitality of long term care provider community.
  11. Alzheimer's Information External link icon
    The Fisher Center for Alzheimer’s Research is the world’s largest research team leading the battle in the fight against Alzheimer’s.
  12. Alzheimer's Outreach External link icon
    Where information and education go hand in hand with caregiving.
  13. Alzheimer's Reading Room External link icon
    The site focuses on Alzheimer's disease and Alzheimer's caregiving. They offer solutions to issues real world problems, such as bad or mean spirited behavior, wandering, urinary tract infections, incontinence, memory care, and what to expect as the disease progresses.
  14. Alzheimer's Speaks from Alzheimer’s advocate, Lori La Bey External link icon
    Alzheimer's Speaks is a resource for professionals and caregivers. There is access to a variety of services, tools, concepts and products for dealing with the disease.
  15. Alzheimer’s Safe Return Program External link icon
    A nationwide system that helps police and private citizens identify, locate and return to safety people who are memory impaired due to this disease or related forms of dementia.
  16. AlzOnline External link icon
    Support group for caregivers
  17. American Academy of Neurology External link icon

  18. American Health Assistance Foundation: Alzheimer's, Macular Degeneration and Glaucoma External link icon
    Alzheimer's, Macular Degeneration and Glaucoma
  19. Care-Pac External link icon
    Clinic trial of new Alzheimer's drugs approved by the FDA. They provide a service to determine elgibility
  20. Care.com External link icon
    Care.com finds care for your children, parents, pets and your home. Their caregivers are mom-reviewed, background checked and have references.
  21. Caregiver Stress, Part 5: Dealing with Alzheimer’s External link icon
    Dealing with Alzheimer’s by Home Instead Senior Care; In this video, Alzheimer’s and other dementia are defined and techniques for coping with a loved one who has dementia are presented. Caring for a dementia patient can cause great stress to the family caregiver, particularly as memory loss progresses. This video provides tips for minimizing that stress.
  22. Carepages (The) External link icon
    Free patient blogs that connect friends and family during a health challenge
  23. Caring.com External link icon
    They focus on eldercare and end-of-life matters. Articles and checklists on health, housing, finance, legal and family issues, and other concerns are featured. Register and create your profile and you can adjust the content to the appropriate stage of care or an individual set of medical conditions.
  24. Cathie Borrie – author, international speaker and Alzheimer's caregiver External link icon
    An investigation into the mysteries of the mind. This is a narrative for everyone interested in the mind and how it shapes our perception of “reality” both in and outside of the dementia experience.
  25. Cognitive Dynamics External link icon
    To improve the quality of life of patients with cognitive disorders,such as Alzheimer’s disease.They employ traditional and innovative therapy techniques facilitated by nationally-known experts in the expressive arts.
  26. Dementia Dynamics External link icon
    The mission of Dementia Dynamics is dedicated to improving the lives of those with dementia and their caregivers through education and technology. In the coming years, an estimated 10 million baby boomers will have Alzheimer’s disease. Very few caregivers, regardless of their level of formal education, receive the in-depth training necessary to succeed in this endeavor. Dementia Dynamics provides training in this area.
  27. Dementia Guide External link icon
    This team has translated research and development information for caregivers of persons with dementia to use as their companion to understand and manage symptoms of dementia,and in particular, Alzheimer's disease.
  28. Easy2Swallow External link icon
    Easy 2 Swallow LLC is dedicated to making quality vitamins and supplements in preparations that are easy to take. Most of the pills out there are just too big for some people to take. They’ve created a line of vitamins and supplements designed to go down easier. In many cases they’re smaller and specially coated. In some cases they’re chewable. In all cases they’re easier to swallow. Only the highest quality formulations are used in all of their products.
  29. Extendicare Inc. External link icon
    Extendicare, one of the largest operators of long-term care facilities in North America. They range from retirement communities for independent living to facilities for Assisted Living-Nursing Home-Hospice, long-term care, skilled nursing and rehabilitation, care for Alzheimer's and related dementias, subacute care, and/or outpatient rehabilitation. Their Web site includes a description of the services offered by each facility.
  30. FirstLight Home Care External link icon
    They provide a complete range of companion and personal care services, as well as progressive offerings such as their Dementia Program, an individualized, engaging approach for all stages of dementia patient care needs, including those with Alzheimer's disease. Their caregivers are carefully screened and receive in-depth training. They provide a range of additional services and innovative technology for safety, client-to-caregiver matching, care monitoring and client/family feedback
  31. Harbor House Assisted Living-Nursing Home-Hospice Oyster Bay, NY External link icon
    Harbor House is located in Oyster Bay, NY. We will provide compassionate, dignified care to our residents. Each level of care is specifically designed to meet the needs of our residents' changing health status.
  32. Hearthstone Alzheimer's Care External link icon
    The Foundation supports both exploratory studies in these areas, as well as focused research. They also support education of caregivers and professionals in non-pharmacological approaches.
  33. John Hopkins Memory Health Alert External link icon
    Do you or a loved one suffer from Alzheimer’s disease or another form of dementia? On this website you can browse the most recent articles on Alzheimer's.
  34. Learning to Speak Alzheimer’s by Joanne Koenig Coste External link icon
    Learning to Speak Alzheimer's by national expert Joanne Koenig Coste, for readers who want to learn how to confront the challenges of daily life in the context of Alzheimer's disease. This book provides tips on everyday living, as well as advice for dealing with emotional issues and learning to communicate effectively with Alzheimer's patients.
  35. Lewy Body Dementia Association External link icon
    LBD refers to both Parkinson’s disease dementia and dementia with Lewy bodies. The earliest symptoms of these two diseases differ, but reflect the same underlying biological changes in the brain. Over time, people with both diagnoses will develop very similar cognitive, physical, sleep, and behavioral symptoms.
  36. Life View Resources External link icon
    Videos for Alzheimer's, Caregiver Education and Family Guide to Long-term Care.
  37. Medical Cost Advocate External link icon
    Helps caregivers and their loved ones reduce their medical costs by validating billing accuracy and negotiating medical bills.  They can negotiate a better price before you have a procedure or reduce your medical bills after services are performed.  They will negotiate your bills regardless of the insurance plan you have -- POS, PPO, high deductible, HSA, HMO, etc.      
  38. MetLife "Aging in Place" Workbook External link icon
    This workbook gives helpful information about how to stay in your home as you age.
  39. My Senior Care External link icon
    Find credible and up-to-date information on home health care agencies, assisted living facilities, hospice nursing, and more.
  40. New LifeStyles External link icon
    New LifeStyles publishes regional directories of nursing homes, Assisted Living-Nursing Home-Hospice and retirement communities. They provide free, quality information on senior residences and care options.
  41. Senior Cognitive Issues by Home Instead Senior Care External link icon
    Senior Cognitive Issues by Home Instead Senior Care; This video series addresses dealing with senior cognitive issues. Topics include: recognizing symptoms of cognitive problems, learning what might be causing them and methods for coping with a loved one who is suffering with these problems.
  42. Senior Cognitive Issues, Part 1 External link icon
    Senior Cognitive Issues by Home Instead Senior Care; Topics included in this video are: dealing with senior cognitive issues, recognizing symptoms of cognitive problems, learning what might be causing them and methods for coping with a loved one who is suffering with these problems.
  43. Senior Cognitive Issues, Part 2: Definition and Symptoms External link icon
    Definition and Symptoms by Home Instead Senior Care; In this video, topics discussed include: what types of cognitive problems there are and describes some of their symptoms.
  44. Senior Cognitive Issues, Part 3: Problems and Causes External link icon
    Problems and Causes by Home Instead Senior Care; In this video, topics discussed include: problems and causes that can lead to cognitive dysfunction or impairment.
  45. Senior Cognitive Issues, Part 4: Coping with Cognitive Problems External link icon
    Coping with Cognitive Problems by Home Instead Senior Care; In this video, topics discussed include:coping mechanisms for helping a loved one who is suffering from cognitive dysfunction or impairment.
  46. Senior Living @ HomeStore.com External link icon
    A nationwide online directory of independent living, Assisted Living-Nursing Home-Hospice, Alzheimer’s care, and continuing care facilities, and nursing homes
  47. Senior Living Finder External link icon
    One of the most comprehensive internet resources for easily locating care services for independent living, assisted living, rehabilitation, Alzheimers, and continuing care. Free access to over 20,000 facilities nationwide. This site will never share your information.
  48. Simon Foundation for Continence External link icon
    The Simon Foundation for Continence is a non-profit 501(c)(3) corporation dedicated to bringing the topic of incontinence out into the open, removing the stigma surrounding incontinence, and providing help and hope for people with incontinence, their families, and the health professionals who provide their care. Their website provides help and knowledge that will motivate you to take the steps, which will lead to the solution that is right for you, and for your particular incontinence. Incontinence affects millions of individuals worldwide. Recent estimates suggest that 26 million adults in America alone are affected by urinary incontinence - and countless more by fecal incontinence or a combination of both types. The importance of reporting incontinence to a healthcare professional who is knowledgeable and interested in treating incontinence cannot be overstated. A correct diagnosis for incontinence is extremely important for finding proper treatment and care, and because incontinence can sometimes be an indicator of a more serious medical condition. Incontinence should not be ignored nor viewed as a normal consequence of childbirth or aging. The Simon Foundation is known worldwide for its innovative educational projects and efforts on behalf of people with loss of bladder and bowel control. You will find the help and knowledge which will motivate you to find the solution that is right for you, and for your particular incontinence.
  49. Sunrise Senior Living Communities External link icon
    Sunrise Senior Living is a provider of senior living services. Sunrise currently operates more than 440 senior living communities throughout the United States. Most offer a full range of Assisted Living-Nursing Home-Hospice services while many also include independent living, skilled nursing care, restorative care and/or care for Alzheimer's and related dementias.
  50. Through the Seasons: An Activity Book for Memory-Challenged Adults and Caregivers External link icon
    A large-format picture book with discussion topics and activities to elicit memories and encourage new positive associations for memory-challenged persons across a wide range of cognitive function. Resource section and instructions included for family and prof. caregivers. by Cynthia R. Green, Joan Beloff
  51. WebMD- Alzheimer's External link icon
    Whether you have Alzheimer's or are an Alzheimer's caregiver, you need information and support. It's here -- along with links to articles about Alzheimer's causes, symptoms, tests, and treatment.
  52. Wellness Brief External link icon
    Unique Wellness, manufacturers the most absorbent adult briefs. Unique Welness brings adult diaper users the most comprehensive, cost effective, healthiest and environmentally friendly incontinence solution available today.