Caregiver Resource Links - Children's Health

There are 98 resource links in this category.
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1. Academic Pediatric Association
   
   
2. Administration for Children and Families
   
   
3. Administration on Developmental Disabilities
   
   
4. Alliance for Technology Access (ATA)
   This is a network of community-based resource centers and assistive technology developers providing support to adults and children with disabilities.
   
5. American Academy of Child and Adolescent Psychiatry
   Understanding childhood mental illness: The child and adolescent psychiatrist is a physician who specializes in the diagnosis and the treatment of disorders of thinking, feeling and/or behavior affecting children, adolescents and their families
   
6. American Association of Poison Control Centers
   AAPCC member poison centers maintain a 24-hour Poison Help hotline, which is staffed by toxicology specialists and provides immediate access to poison exposure management instructions and information on potential poisons.
   
7. American Society of Pediatric Hematology/Oncology
   
   
8. ARCH National Respite Network
   The ARCH program was begun in the early 1990s with funding from the Children's Bureau in the US Department of Health and Human Services to support a national network of federally funded respite and crisis care programs for children with disabilities, chronic illness and at risk of abuse and neglect. During its tenure as a national resource center, ARCH staff developed an array of resources for families and respite providers, including the national respite locator service, guides for starting respite programs in communities, and fact sheets on a variety of topics related to respite and crisis care not only for children and their families but also for families who are caring for the elderly.
   
9. Autism Society of America
   
   
10. Autism Speaks
    
    
11. Campaign for Tobacco Free Kids
    
    
12. Candlelighters Childhood Cancer Foundation
    Their mission is to provide information and awareness for children and adolescents with cancer and their families, to advocate for their needs, and to support research so every child survives and leads a long and healthy life.
    
13. Child & Adolescent Bipolar Foundation
    
    
14. Child & Elder Care Insights for Dependent Care
    Child & Elder Care Insights, Inc. is a privately held national provider of dependent care and work/life information services.
    
15. Child Care Aware (National Association of Child Care Resource and Referral Agencies)
    
    
16. Childhelp
    
    
17. Childhood Brain Tumor Foundation
    
    
18. Children and Adults with Spina Bifida and Hydrocephalus
    
    
19. Children's Bureau
    
    
20. Children's Cardiomyopathy Foundation
    
    
21. Children's Craniofacial Association
    
    
22. Children's Hemiplegia and Stroke Association
    
    
23. Children's Hospice International
    
    
24. Children's Tumor Foundation
    
    
25. Cleft Palate Foundation
    
    
26. Congenital Heart Information Network
    
    
27. CureSearch (Children's Oncology Group, National Childhood Cancer Foundation)
    
    
28. Cystic Fibrosis Foundation
    The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
    
29. Easter Seals
    
    
30. Family Health International
    
    
31. Family Voices- Children and Youth
    Family Voices, a national grassroots network of families and friends, advocates for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent for all children and youth with special health care needs; promotes the inclusion of all families as decision makers at all levels of health care; and supports essential partnerships between families and professionals.
    
32. Federal Interagency Forum on Child and Family Statistics
    
    
33. Fetal Alcohol Spectrum Disorders Center for Excellence
    
    
34. First Candle
    
    
35. FPG Child Development Institute
    
    
36. Generation S: Young Stroke Survivors
    Generation S raises stroke awareness in young people and advocates for a better, faster response from the medical community.
    
37. Grandloving
    With Grandloving’s ideas you’ll connect, bond, and grow closer to your grandchildren
    
38. Grandparents.com
    
    
39. HER Foundation
    HG is a debilitating and potentially life-threatening pregnancy disease marked by rapid weight loss, malnutrition, and dehydration due to unrelenting nausea and/or vomiting with potential adverse consequences for the newborn(s).
    
40. Heroes for Children
    Texas: Heroes for Children provides financial and social assistance to families, within the state of Texas, of children (ages 0-22 years) battling cancer.They help families pay for rent, utilities, medical bills, and more.This assistance eases the stress and enables the family to focus on the most important part of treatment - the child.
    
41. Injury Free Coalition for Kids
    
    
42. International Children's Continence Society
    The goal of the ICCA is to improve the quality of life and the life expectancy for all growing individuals with deficient bladder function, expressed as problems of storage and evacuation of urine. ICCS intends to increasE knowledge in all aspects of this problem area.
    
43. International Dyslexia Association
    
    
44. Juvenile Diabetes Research Foundation
    JDRF is a leader in setting the agenda for diabetes research worldwide, and is the largest charitable funder and advocate of type 1 research. They seek a cure for diabetes and its complications through the support of research.
    
45. Kid's Health
    
    
46. Kids Konnected Children whose parent has cancer support
    Kids Konnected's mission is to provide friendship, understanding, education, and support for the children who have a parent with cancer, or have lost a parent to cancer.
    
47. Leadership to Keep Children Alcohol Free
    
    
48. Learning Disabilities Association of America
    
    
49. Lighthouse International
    Lighthouse International is dedicated to fighting vision loss through prevention, treatment and empowerment.For 106 years, Lighthouse International has been a leader in helping people of all ages who are at risk for, or are experiencing, vision loss. Our services enable people with low vision and blindness to enjoy safe, independent and productive lives.
    
50. March of Dimes Birth Defects Foundation
    
    
51. Maternal and Child Health Bureau
    
    
52. National Association for Down Syndrome
    
    
53. National Association of Pediatric Nurse Practitioners
    
    
54. National Autism Association
    
    
55. National Campaign to Prevent Teen Pregnancy
    FSHD is a grassroots network of facioscapulohumeral muscular dystrophy patients, their families and research activists.
    
56. National Center for Learning Disabilities
    
    
57. National Center for Missing and Exploited Children
    
    
58. National Center on Birth Defects and Developmental Disabilities
    
    
59. National Child Care Information Center
    
    
60. National Child Traumatic Stress Network
    
    
61. National Children's Center for Rural and Agricultural Health and Safety
    
    
62. National Dissemination Center for Children with Disabilities
    The center provides information on disabilities in children and youth, programs and services for infants, children, and youth with disabilities and much more.
    
63. National Down Syndrome Society
    
    
64. National Institute of Child Health and Human Development
    
    
65. National MPS Society
    
    
66. National Organization on Fetal Alcohol Syndrome
    
    
67. National PKU News
    PKU is a rare, inherited metabolic disease that results in mental retardation and other neurological problems when treatment is not started within the first few weeks of life.
    
68. National Reye's Syndrome Foundation
    
    
69. National Runaway Switchboard
    
    
70. National Stuttering Association
    
    
71. National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Resource Center
    
    
72. National Urea Cycle Disorders Foundation
    
    
73. National Youth Anti-Drug Media Campaign
    
    
74. Nevus Outreach, Inc.
    Nevus Outreach deals specifically with large congenital melanocytic nevi - big pigmented moles that are present at birth.
    
75. North American Society for Pediatric and Adolescent Gynecology
    
    
76. North American Society for Pediatric Gastroenterology, Hepatology and Nutrition
    
    
77. Pediatric Brain Tumor Foundation
    
    
78. Pediatric Endocrinology Nurses Society
    
    
79. Planet Cancer - Young adults and children with cancer
    Planet Cancer is a community of young adults with cancer.
    
80. Postpartum Support International
    They promote awareness, prevention and treatment of mental health issues related to childbearing in every country worldwide.
    
81. Prevent Child Abuse America
    
    
82. Ronald McDonald House – housing during hospital care
    Ronald McDonald House provides a home away from home for families of seriously ill children receiving treatment at nearby hospitals.
    
83. Safe Kids Worldwide
    
    
84. Sarcoma Foundation of America
    Sarcoma is a rare cancer in adults (1% of all adult cancers), but rather prevalent in children (about 15% of all childhood cancers).  It is made up of many “subtypes” because it can arise from a variety of tissue structures (nerves, muscles, joints, bone, fat, blood vessels - these are collectively referred to as the body’s “connective tissues”). 
    
85. Society for Adolescent Medicine
    
    
86. Society for Maternal-Fetal Medicine
    
    
87. Society for Reproductive Endocrinology and Infertility
    
    
88. Spina Bifida Association of America
    
    
89. Stuttering Foundation of America
    
    
90. Sudden Arrhythmia Death Syndromes (SADS) Foundation
    
    
91. Tourette Syndrome Association
    
    
92. TrialNet
    Type 1 Diabetes TrialNet is an international network of researchers who are exploring ways to prevent, delay and reverse the progression of type 1 diabetes.
    
93. Unique Home Care Services - Harrisburg, PA
    Located in Harrisburg, PA, their mission is to provide the highest quality of home care services, for children in need and seniors. All of their in-home care providers are extremely understanding, skilled and experienced in caring for the elderly and pediatric cases. They are family owned, not a typical franchise. They work with families and daycare centers to keep children with disabilities in daycare centers and in after school programs. They carefully screen our staff with extensive criminal background checks, including child abuse clearances, social security validation, and diligent reference checks. Your loved one deserves to have all the comforts of home. And parents deserve to have the best care for their special child– and that’s exactly where they’ll care for them.
    
94. United Cerebral Palsy
    
    
95. Virtual Pediatric Hospital
    
    
96. Warmlines Parent Resources
    WarmLines Parent Resources provides information which supports parents by connecting them to each other and to resources in their communities.
    
97. Youth Rally
    Adolescents with bladder or bowel dysfunction receive education and psychosocial support that encourages independent living. Scholarships are available on their website.
    
98. Zero to Three: National Center for Infants, Toddlers and Families